Just got off the phone with Social Security and found out that I likely don’t qualify for my infant daughter’s SSI disability support because I make $400/month more than the supposed maximum allowed.
My daughter has a congenital heart defect, chromosomal disorder and several other health issues to work through
She has been hospitalized since birth and has been on breathing support for most of her first 8 months of life,
Even though I made all the “right” decisions for our family’s safety and financial security:
Scrimped and saved to have a good emergency fund
Got a secure union job that fights for regular pay raises and COLA adjustments
Don’t own a car, bike and bus for all travel
The absolute cheapest rent I can find for an acceptable one-bedroom apartment
Live in a city with access to a children’s hospital for my daughter’s multiple health needs and specialists she will need for the rest of her life
Piled on to the fact that my wife and I have no family financial support because I grew up out of extreme poverty and my wife is an immigrant with her whole family also impoverished.
Any Hexbears experienced with this process? Was told I could possibly appeal after getting a probable rejection letter in the mail.
That was the thing. The interviewer didn’t even ask about a medical history for my daughter. Just the boilerplate questions about being disabled or blind.
With all of her various ailments, she will likely meet whatever the definition of disabled is [as well as having some vision issues in one eye], but we are still in the observation, diagnosis, and recovery stages at the hospital.
I think it being a phone interview versus in-person hurt as well.
